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    • Desmoid fibromatosis through the patients' eyes: time to change the focus and organisation of care? 

      Husson, O; Younger, E; Dunlop, A; Dean, L; Strauss, DC; Benson, C; Hayes, AJ; Miah, A; van Houdt, W; Zaidi, S; Smith, M; Williams, J; Jones, RL; van der Graaf, WTA (2019-03)
      PURPOSE: Desmoid fibromatosis (DF) is a rare, unpredictable disease with no established, evidence-based treatments. Individual management is based on consensus algorithms. This study aimed to examine the specific health-related ...