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dc.contributor.authorFoster, C
dc.contributor.authorEiser, C
dc.contributor.authorOades, P
dc.contributor.authorSheldon, C
dc.contributor.authorTripp, J
dc.contributor.authorGoldman, P
dc.contributor.authorRice, S
dc.contributor.authorTrott, J
dc.date.accessioned2018-09-24T15:52:58Z
dc.date.issued2001-07
dc.identifier4
dc.identifier.citationCHILD CARE HEALTH AND DEVELOPMENT, 2001, 27 pp. 349 - 364
dc.identifier.issn0305-1862
dc.identifier.urihttps://repository.icr.ac.uk/handle/internal/2842
dc.identifier.doi10.1046/j.1365-2214.2001.00196.x
dc.description.abstractCystic fibrosis (CF) is a progressive disease with no known cure. Advances in diagnosis and treatment have resulted in patients living longer and thus families live with the illness for longer. Treatments are becoming increasingly demanding and are largely performed in the family home. Mothers are often reported to experience greater stress and poorer adjustment than mothers of well children or population norms. Patients and siblings are also reported to display adjustment difficulties. Siblings have rarely been included in research designs. This qualitative study investigates the impact of CF and treatment on eight patients, eight mothers, one father and eight siblings. A family systems perspective was adopted. Each individual was interviewed independently using semistructured interviews. Patients and siblings were aged between 9 and 21 years. Qualitative analyses revealed high levels of non-adherence (intentional and unintentional) and parental involvement in treatment, minimal involvement of siblings, and preferential treatment towards patients. Demanding treatment, coupled with the progressive nature of CF, promote high levels of parental involvement for younger children as well as older teenagers, often due to attempted or actual non-adherence. Siblings may receive less attention while patients’ needs take priority. Future development of a measure of adherence suitable for children and adolescents should take into account different motivations for non-adherence, particularly regarding the level of personal control over adherence to treatment. In addition, the potential impact of having a brother or sister with CF should not be underestimated and the needs of siblings should not go unnoticed.
dc.format.extent349 - 364
dc.languageeng
dc.language.isoeng
dc.publisherBLACKWELL SCIENCE LTD
dc.titleTreatment demands and differential treatment of patients with cystic fibrosis and their siblings: patient, parent and sibling accounts
dc.typeJournal Article
rioxxterms.versionofrecord10.1046/j.1365-2214.2001.00196.x
rioxxterms.licenseref.startdate2001-07
rioxxterms.typeJournal Article/Review
dc.relation.isPartOfCHILD CARE HEALTH AND DEVELOPMENT
pubs.notesaffiliation: Foster, C (Reprint Author), Inst Canc Res, Dept Psychol Med, Sutton SM2 5PT, Surrey, England. Inst Canc Res, Dept Psychol Med, Sutton SM2 5PT, Surrey, England. Univ Sheffield, Dept Psychol, Sheffield S10 2TN, S Yorkshire, England. Royal Devon & Exeter Hosp, Dept Resp Med, Exeter EX2 5DW, Devon, England. Royal Devon & Exeter Hosp, Dept Paediat, Exeter EX2 5DW, Devon, England. keywords: cystic fibrosis; siblings; differential treatment; adherence keywords-plus: PSYCHOLOGICAL ADJUSTMENT; CHILDREN; MOTHERS; ADOLESCENTS; SYMPTOMS; BEHAVIOR; ILLNESS; DISEASE research-areas: Psychology; Pediatrics web-of-science-categories: Psychology, Developmental; Pediatrics researcherid-numbers: Foster, Claire/N-6223-2016 orcid-numbers: Foster, Claire/0000-0002-4703-8378 number-of-cited-references: 27 times-cited: 38 usage-count-last-180-days: 0 usage-count-since-2013: 5 journal-iso: Child Care Health Dev. doc-delivery-number: 450AW unique-id: ISI:000169720200004 da: 2018-09-24
pubs.notesNot known
pubs.organisational-group/ICR
pubs.organisational-group/ICR
pubs.volume27
pubs.embargo.termsNot known
dc.contributor.icrauthorFoster, Cen


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