Now showing items 1-2 of 2

    • Desmoid fibromatosis through the patients' eyes: time to change the focus and organisation of care? 

      Husson, O; Younger, E; Dunlop, A; Dean, L; Strauss, DC; Benson, C; Hayes, AJ; Miah, A; van Houdt, W; Zaidi, S; Smith, M; Williams, J; Jones, RL; van der Graaf, WTA (2019-03)
      Purpose Desmoid fibromatosis (DF) is a rare, unpredictable disease with no established, evidence-based treatments. Individual management is based on consensus algorithms. This study aimed to examine the specific health-related ...
    • Telemedicine During the COVID-19 Pandemic: Impact on Care for Rare Cancers. 

      Smrke, A; Younger, E; Wilson, R; Husson, O; Farag, S; Merry, E; Macklin-Doherty, A; Cojocaru, E; Arthur, A; Benson, C; Miah, AB; Zaidi, S; Gennatas, S; Jones, RL (2020-07)
      Purpose Many patients with cancer, often those with rare cancers such as sarcomas, travel long distances to access expert care. The COVID-19 pandemic necessitated widespread changes in delivery of cancer care, including ...