Challenges and recommendations for high quality research using electronic health records.
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Embargo End Date
ICR Authors
Authors
Honeyford, K
Expert, P
Mendelsohn, EE
Post, B
Faisal, AA
Glampson, B
Mayer, EK
Costelloe, CE
Expert, P
Mendelsohn, EE
Post, B
Faisal, AA
Glampson, B
Mayer, EK
Costelloe, CE
Document Type
Journal Article
Date
2022-08-19
Date Accepted
2022-07-28
Abstract
Harnessing Real World Data is vital to improve health care in the 21st Century. Data from Electronic Health Records (EHRs) are a rich source of patient centred data, including information on the patient's clinical condition, laboratory results, diagnoses and treatments. They thus reflect the true state of health systems. However, access and utilisation of EHR data for research presents specific challenges. We assert that using data from EHRs effectively is dependent on synergy between researchers, clinicians and health informaticians, and only this will allow state of the art methods to be used to answer urgent and vital questions for patient care. We propose that there needs to be a paradigm shift in the way this research is conducted - appreciating that the research process is iterative rather than linear. We also make specific recommendations for organisations, based on our experience of developing and using EHR data in trusted research environments.
Citation
Frontiers in Digital Health, 2022, 4 pp. 940330 -
Source Title
Frontiers in Digital Health
Publisher
FRONTIERS MEDIA SA
ISSN
2673-253X
eISSN
2673-253X
2673-253X
2673-253X
Collections
Research Team
Health Informatics
