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dc.contributor.authorLidington, E
dc.contributor.authorDarlington, AS
dc.contributor.authorVlooswijk, C
dc.contributor.authorBeardsworth, S
dc.contributor.authorMcCaffrey, S
dc.contributor.authorTang, S
dc.contributor.authorStallard, K
dc.contributor.authorYounger, E
dc.contributor.authorEdwards, P
dc.contributor.authorAli, AI
dc.contributor.authorNandhabalan, M
dc.contributor.authorDin, A
dc.contributor.authorStarling, N
dc.contributor.authorLarkin, J
dc.contributor.authorStanway, S
dc.contributor.authorNobbenhuis, M
dc.contributor.authorBanerjee, S
dc.contributor.authorSzucs, Z
dc.contributor.authorGonzalez, M
dc.contributor.authorSirohi, B
dc.contributor.authorHusson, O
dc.contributor.authorvan der Graaf, WTA
dc.date.accessioned2021-10-20T09:36:44Z
dc.date.available2021-10-20T09:36:44Z
dc.identifier.citationClinical oncology (Royal College of Radiologists (Great Britain)), 2021, 33 (8), pp. 494 - 506en_US
dc.identifier.issn0936-6555
dc.identifier.urihttps://repository.icr.ac.uk/handle/internal/4834
dc.identifier.eissn1433-2981en_US
dc.identifier.eissn1433-2981
dc.identifier.doi10.1016/j.clon.2021.02.010en_US
dc.identifier.doi10.1016/j.clon.2021.02.010
dc.description.abstract<h4>Aims</h4>Adolescents and young adults aged 15-39 years with cancer face unique medical, practical and psychosocial issues. In the UK, principal treatment centres and programmes have been designed to care for teenage and young adult patients aged 13-24 years in an age-appropriate manner. However, for young adults (YAs) aged 25-39 years with cancer, little access to age-specific support is available. The aim of this study was to examine this possible gap by qualitatively exploring YA care experiences, involving patients as research partners in the analysis to ensure robust results.<h4>Materials and methods</h4>We conducted a phenomenological qualitative study with YAs diagnosed with any cancer type between ages 25 and 39 years old in the last 5 years. Participants took part in interviews or focus groups and data were analysed using inductive thematic analysis. Results were shaped in an iterative process with the initial coders and four YA patients who did not participate in the study to improve the rigor of the results.<h4>Results</h4>Sixty-five YAs with a range of tumour types participated. We identified seven themes and 13 subthemes. YAs found navigating the healthcare system difficult and commonly experienced prolonged diagnostic pathways. Participants felt under-informed about clinical details and the long-term implications of side-effects on daily life. YAs found online resources overwhelming but also a source of information and treatment support. Some patients regretted not discussing fertility before cancer treatment or felt uninformed or rushed when making fertility preservation decisions. A lack of age-tailored content or age-specific groups deterred YAs from accessing psychological support and rehabilitation services.<h4>Conclusions</h4>YAs with cancer may miss some benefits provided to teenagers and young adults in age-tailored cancer services. Improving services for YAs in adult settings should focus on provision of age-specific information and access to existing relevant support.en_US
dc.formatPrint-Electronicen_US
dc.format.extent494 - 506en_US
dc.languageengen_US
dc.language.isoengen_US
dc.rights.urihttp://creativecommons.org/licenses/by/4.0/en_US
dc.titleBeyond Teenage and Young Adult Cancer Care: Care Experiences of Patients Aged 25-39 Years Old in the UK National Health Service.en_US
dc.typeJournal Article
dcterms.dateAccepted2021-02-17
rioxxterms.versionVoRen_US
rioxxterms.versionofrecord10.1016/j.clon.2021.02.010en_US
dc.relation.isPartOfClinical oncology (Royal College of Radiologists (Great Britain))en_US
pubs.issue8en_US
pubs.notesNot knownen_US
pubs.organisational-group/ICR
pubs.organisational-group/ICR/Primary Group
pubs.organisational-group/ICR/Primary Group/ICR Divisions
pubs.organisational-group/ICR/Primary Group/ICR Divisions/Clinical Studies
pubs.organisational-group/ICR/Primary Group/ICR Divisions/Clinical Studies/Clinical and Translational Sarcoma
pubs.organisational-group/ICR/Primary Group/ICR Divisions/Clinical Studies/Gastrointestinal Cancers Clinical Trials
pubs.organisational-group/ICR/Primary Group/ICR Divisions/Clinical Studies/Gastrointestinal Cancers Clinical Trials/Gastrointestinal Cancers Clinical Trials (hon.)
pubs.organisational-group/ICR/Primary Group/Royal Marsden Clinical Units
pubs.publication-statusPublisheden_US
pubs.volume33en_US
pubs.embargo.termsNot knownen_US
icr.researchteamClinical and Translational Sarcoma
icr.researchteamGastrointestinal Cancers Clinical Trials
dc.contributor.icrauthorStarling, Naureenen
dc.contributor.icrauthorBanerjee, Susanaen
dc.contributor.icrauthorHusson, Olgaen


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