Association between information provision and supportive care needs among ovarian cancer survivors: A cross-sectional study from the PROFILES registry.
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Date
2018-08-01ICR Author
Author
Rietveld, MJA
Husson, O
Vos, MCC
van de Poll-Franse, LV
Ottevanger, PBN
Ezendam, NPM
Type
Journal Article
Metadata
Show full item recordAbstract
OBJECTIVE: To examine the association between satisfaction with perceived information provision during diagnosis and treatment and supportive care needs in ovarian cancer survivors. METHODS: In 2012, women (n = 348) diagnosed with ovarian cancer, as registered between 2000 and 2010 in the Netherlands Cancer Registry, received a questionnaire including questions on the perceived level of, and satisfaction with, information received (EORTC QLQ-INFO25) and supportive care needs (Cancer Survivors' Unmet Needs Measure). RESULTS: Of 348 women, 191 (55%) responded. Of all participants, 35% were not satisfied (n = 65) with the perceived amount of information received. Participants who were satisfied with the amount of information reported significantly higher levels of perceived information on disease, medical tests, treatment, and other services. Patients not satisfied with information provision had a higher total number of needs and a higher number of unmet needs than women satisfied with information provision. Multivariable linear regression analysis showed that satisfaction with information provision was negatively associated with the total number of unmet needs (β = -0.20, P = .03) after adjustment for potential confounding clinical and sociodemographic factors. CONCLUSION: Ovarian cancer survivors satisfied with the information provision during treatment reported fewer unmet needs during survivorship. Optimization of information provision for ovarian cancer patients during initial diagnosis and treatment may contribute to a decrease in unmet needs during survivorship.
Collections
Subject
Humans
Ovarian Neoplasms
Registries
Cross-Sectional Studies
Adult
Aged
Aged, 80 and over
Middle Aged
Health Services Needs and Demand
Patient Satisfaction
Netherlands
Female
Cancer Survivors
Research team
Clinical and Translational Sarcoma
Language
eng
Date accepted
2018-04-12
License start date
2018-08
Citation
Psycho-oncology, 2018, 27 (8), pp. 1922 - 1929
Publisher
WILEY