Browsing Clinical Studies by author "Husson, Olga"
Now showing items 1-20 of 35
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A disease-specific Quality of Life questionnaire for primary aldosteronism.
Velema, MS; de Nooijer, A; Hermus, ARMM; Timmers, HJLM; Lenders, JWM; et al. (BIOSCIENTIFICA LTD, 2019-04-01)OBJECTIVE: To develop a primary aldosteronism (PA) disease-specific Health-Related Quality of Life (HRQoL) questionnaire. METHODS: We included newly diagnosed patients with PA (n = 26), and patients with PA after adrenalectomy ... -
A Life Put on Pause: An Exploration of the Health-Related Quality of Life Issues Relevant to Adolescents and Young Adults with Cancer.
Sodergren, SC; Husson, O; Rohde, GE; Tomaszewska, IM; Vivat, B; et al. (MARY ANN LIEBERT, INC, 2018-03-22)PURPOSE: In recent years, the assessment of health-related quality of life (HRQoL) has been recognized as particularly informative to healthcare providers. For adolescents and young adults (AYAs), the impact of a cancer ... -
Adolescent and young adult (AYA) lymphoma survivors report lower health-related quality of life compared to a normative population: results from the PROFILES registry.
Husson, O; Prins, JB; Kaal, SEJ; Oerlemans, S; Stevens, WB; et al. (TAYLOR & FRANCIS LTD, 2017-02-01)BACKGROUND: Trying to simultaneously achieve developmental milestones and cope with a life-threatening disease may place adolescents and young adults (AYAs) at risk for impaired health-related quality of life (HRQoL) later ... -
Age-related sarcoma patient experience: results from a national survey in England.
Younger, E; Husson, O; Bennister, L; Whelan, J; Wilson, R; et al. (BMC, 2018-10-17)BACKGROUND: Sarcomas are rare, heterogeneous tumours affecting patients of any age. Previous surveys describe that sarcoma patients report a significantly worse experience than those with common cancers. Consequently, ... -
An immunotherapy survivor population: health-related quality of life and toxicity in patients with metastatic melanoma treated with immune checkpoint inhibitors.
O'Reilly, A; Hughes, P; Mann, J; Lai, Z; Teh, JJ; et al. (SPRINGER, 2020-02-01)PURPOSE: The immune checkpoint inhibitors (ICIs) have resulted in subgroups of patients with metastatic melanoma achieving high-quality durable responses. Metastatic melanoma survivors are a new population in the era of ... -
Association between information provision and supportive care needs among ovarian cancer survivors: A cross-sectional study from the PROFILES registry.
Rietveld, MJA; Husson, O; Vos, MCC; van de Poll-Franse, LV; Ottevanger, PBN; et al. (WILEY, 2018-08-01)OBJECTIVE: To examine the association between satisfaction with perceived information provision during diagnosis and treatment and supportive care needs in ovarian cancer survivors. METHODS: In 2012, women (n = 348) diagnosed ... -
Beyond Teenage and Young Adult Cancer Care: Care Experiences of Patients Aged 25-39 Years Old in the UK National Health Service.
Lidington, E; Darlington, AS; Vlooswijk, C; Beardsworth, S; McCaffrey, S; et al. (ELSEVIER SCIENCE LONDON, 2021-08-01)AIMS: Adolescents and young adults aged 15-39 years with cancer face unique medical, practical and psychosocial issues. In the UK, principal treatment centres and programmes have been designed to care for teenage and young ... -
Describing Unmet Supportive Care Needs among Young Adults with Cancer (25-39 Years) and the Relationship with Health-Related Quality of Life, Psychological Distress, and Illness Cognitions.
Lidington, E; Darlington, A-S; Din, A; Stanway, S; Banerjee, S; et al. (MDPI, 2021-09-28)Few studies describe supportive care needs among young adults (YAs) with cancer ages 25 to 39 using validated questionnaires. Previous findings identified the need for psychological and information support and suggest that ... -
Desmoid fibromatosis through the patients' eyes: time to change the focus and organisation of care?
Husson, O; Younger, E; Dunlop, A; Dean, L; Strauss, DC; et al. (SPRINGER, 2019-03-01)PURPOSE: Desmoid fibromatosis (DF) is a rare, unpredictable disease with no established, evidence-based treatments. Individual management is based on consensus algorithms. This study aimed to examine the specific health-related ... -
Development of a Disease-Specific Health-Related Quality of Life Questionnaire (DTF-QoL) for Patients with Desmoid-Type Fibromatosis.
Schut, A-RW; Lidington, E; Timbergen, MJM; Younger, E; van der Graaf, WTA; et al. (MDPI, 2022-01-29)Sporadic desmoid-type fibromatosis (DTF) is a rare, non-metastasising soft-tissue tumour. Patients can experience a variety of disease-specific issues related to the unpredictable clinical course and aggressiveness of DTF, ... -
Does age matter? A comparison of health-related quality of life issues of adolescents and young adults with cancer.
Sodergren, SC; Husson, O; Rohde, GE; Tomaszewska, IM; Griffiths, H; et al. (WILEY, 2018-11-01)OBJECTIVE: Health-related quality of life (HRQoL) concerns of adolescents and young adults (AYAs) aged 14-25 years were compared with those of older adults (26-60 years) with cancer. METHODS: AYAs and older adults receiving ... -
Empowerment in adolescents and young adults with cancer: Relationship with health-related quality of life.
Kaal, SEJ; Husson, O; van Duivenboden, S; Jansen, R; Manten-Horst, E; et al. (WILEY, 2017-10-15)BACKGROUND: The difficulties adolescents and young adults (AYAs) encounter during a cancer experience may result in a reduction in or absence of empowerment. The aims of the current study were to assess levels of empowerment ... -
Evaluating a digital tool for supporting breast cancer patients: a randomized controlled trial protocol (ADAPT).
Lidington, E; McGrath, SE; Noble, J; Stanway, S; Lucas, A; et al. (BMC, 2020-01-15)BACKGROUND: There are a growing number of mHealth tools for breast cancer patients but a lack of scientific evidence for their effects. Recent studies have shown a mix of positive and negative impacts on users. Here we ... -
Health-related quality of life among cancer patients in their last year of life: results from the PROFILES registry.
Raijmakers, NJH; Zijlstra, M; van Roij, J; Husson, O; Oerlemans, S; et al. (SPRINGER, 2018-10-01)PURPOSE: The aim of this study was to assess health-related quality of life (HRQoL) in the last year of life of cancer patients stratified by four periods of time before death. PATIENTS AND METHODS: Between 2008 and 2015, ... -
Health-Related Quality of Life and Side Effects in Gastrointestinal Stromal Tumor (GIST) Patients Treated with Tyrosine Kinase Inhibitors: A Systematic Review of the Literature.
van de Wal, D; Elie, M; Le Cesne, A; Fumagalli, E; den Hollander, D; et al. (MDPI, 2022-04-05)BACKGROUND: The introduction of tyrosine kinase inhibitors (TKIs) has revolutionized the treatment of gastrointestinal stromal tumors (GISTs), resulting in a substantial gain in median overall survival. Subsequently, ... -
Identification and assessment of health-related quality of life issues in patients with sporadic desmoid-type fibromatosis: a literature review and focus group study.
Timbergen, MJM; van de Poll-Franse, LV; Grünhagen, DJ; van der Graaf, WT; Sleijfer, S; et al. (SPRINGER, 2018-12-01)PURPOSE: Sporadic desmoid-type fibromatosis (DTF) is a rare, chronic, non-metastasising, disease of the soft tissues. It is characterised by local invasive and unpredictable growth behaviour and a high propensity of local ... -
Identifying health-related quality of life cut-off scores that indicate the need for supportive care in young adults with cancer.
Lidington, E; Giesinger, JM; Janssen, SHM; Tang, S; Beardsworth, S; et al. (SPRINGER, 2022-04-27)PURPOSE: Using patient-reported outcomes in routine cancer care may improve health outcomes. However, a lack of information about which scores are problematic in specific populations can impede use. To facilitate interpretation ... -
Metastatic Soft Tissue Sarcomas in Adolescents and Young Adults: A Specialist Center Experience.
Younger, E; Husson, O; Asare, B; Benson, C; Judson, I; et al. (MARY ANN LIEBERT, INC, 2020-05-05)Purpose: Soft tissue sarcomas (STS) account for 8% of all cancers in adolescents and young adults (AYAs). Metastatic STS contribute significantly to disease-related mortality in this age group; however, data are limited ... -
Online support community for adolescents and young adults (AYAs) with cancer: user statistics, evaluation, and content analysis.
Kaal, SE; Husson, O; van Dartel, F; Hermans, K; Jansen, R; et al. (DOVE MEDICAL PRESS LTD, 2018-01-01)PURPOSE: Peer support is an important unmet need among adolescent and young adult (AYA) cancer patients. This study was conducted to describe the use and evaluation of a Dutch secure online support community for AYA diagnosed ... -
Outcomes of Patients with Early Onset Colorectal Cancer Treated in a UK Specialist Cancer Center.
Georgiou, A; Khakoo, S; Edwards, P; Minchom, A; Kouvelakis, K; et al. (MDPI, 2019-10-14)The incidence of early onset colorectal cancer (EOCRC) is rapidly increasing, but there remains paucity of outcome data for young CRC patients. We reviewed the characteristics and outcomes of 241 adults, age <50, who were ...