dc.contributor.author | Jones, RL | |
dc.coverage.spatial | England | |
dc.date.accessioned | 2022-11-30T11:42:58Z | |
dc.date.available | 2022-11-30T11:42:58Z | |
dc.date.issued | 2022-10-03 | |
dc.identifier.citation | Future Oncology, 2022, 18 (29s), pp. 3 - 11 | en_US |
dc.identifier.issn | 1479-6694 | |
dc.identifier.uri | https://repository.icr.ac.uk/handle/internal/5587 | |
dc.identifier.eissn | 1744-8301 | |
dc.identifier.eissn | 1744-8301 | |
dc.identifier.doi | 10.2217/fon-2022-0635 | |
dc.description.abstract | An international collaborative project set up as a 'priority setting partnership' used a questionnaire to capture the views of patients, carers and clinicians about the sarcoma research agenda. Responses from 25 patients with leiomyosarcoma (LMS) in eight countries provided useful insight from the patient's perspective. Unmet needs identified by patients were in the areas of: LMS-specific trial design; exploring new therapeutic avenues; avoiding morcellation; exploring the immune system in LMS; investigating circulating tumor DNA; implementing molecular characterization of LMS; conducting basic research and a translational pipeline; evaluating imaging modalities; improving early diagnosis; identifying patient-reported outcomes; improving communication, information and support; and addressing survivorship and end-of-life care. Each of the unmet needs is described in more detail. | |
dc.format | Print-Electronic | |
dc.format.extent | 3 - 11 | |
dc.language | eng | |
dc.language.iso | eng | en_US |
dc.publisher | FUTURE MEDICINE LTD | en_US |
dc.relation.ispartof | Future Oncology | |
dc.rights.uri | https://creativecommons.org/licenses/by-nc-nd/4.0/ | en_US |
dc.subject | advocacy | |
dc.subject | leiomyosarcoma | |
dc.subject | patient perspective | |
dc.subject | unmet medical needs | |
dc.subject | Female | |
dc.subject | Humans | |
dc.subject | Circulating Tumor DNA | |
dc.subject | Leiomyosarcoma | |
dc.subject | Clinical Trials as Topic | |
dc.subject | Research Design | |
dc.title | On the road to improved outcomes by capturing leiomyosarcoma patients' views. | en_US |
dc.type | Journal Article | |
dcterms.dateAccepted | 2022-10-03 | |
dc.date.updated | 2022-11-30T11:41:48Z | |
rioxxterms.version | VoR | en_US |
rioxxterms.versionofrecord | 10.2217/fon-2022-0635 | en_US |
rioxxterms.licenseref.startdate | 2022-10-03 | |
rioxxterms.type | Journal Article/Review | en_US |
pubs.author-url | https://www.ncbi.nlm.nih.gov/pubmed/36189762 | |
pubs.issue | 29s | |
pubs.organisational-group | /ICR | |
pubs.organisational-group | /ICR/Primary Group | |
pubs.organisational-group | /ICR/Primary Group/ICR Divisions | |
pubs.organisational-group | /ICR/Primary Group/ICR Divisions/Clinical Studies | |
pubs.organisational-group | /ICR/Primary Group/ICR Divisions/Clinical Studies/Sarcoma Clinical Trials (R Jones) | |
pubs.organisational-group | /ICR/Primary Group/Royal Marsden Clinical Units | |
pubs.organisational-group | /ICR/Primary Group/ICR Divisions/Clinical Studies/Sarcoma Clinical Trials (R Jones)/Sarcoma Clinical Trials (R Jones) (hon.) | |
pubs.publication-status | Published | |
pubs.publisher-url | http://dx.doi.org/10.2217/fon-2022-0635 | |
pubs.volume | 18 | |
dc.contributor.icrauthor | Jones, Robin | |
icr.provenance | Deposited by Mr Arek Surman on 2022-11-30. Deposit type is initial. No. of files: 1. Files: fon-2022-0635.pdf | |