On the road to improved outcomes by capturing leiomyosarcoma patients' views.
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Date
2022-10-03ICR Author
Author
Jones, RL
Type
Journal Article
Metadata
Show full item recordAbstract
An international collaborative project set up as a 'priority setting partnership' used a questionnaire to capture the views of patients, carers and clinicians about the sarcoma research agenda. Responses from 25 patients with leiomyosarcoma (LMS) in eight countries provided useful insight from the patient's perspective. Unmet needs identified by patients were in the areas of: LMS-specific trial design; exploring new therapeutic avenues; avoiding morcellation; exploring the immune system in LMS; investigating circulating tumor DNA; implementing molecular characterization of LMS; conducting basic research and a translational pipeline; evaluating imaging modalities; improving early diagnosis; identifying patient-reported outcomes; improving communication, information and support; and addressing survivorship and end-of-life care. Each of the unmet needs is described in more detail.
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Subject
advocacy
leiomyosarcoma
patient perspective
unmet medical needs
Female
Humans
Circulating Tumor DNA
Leiomyosarcoma
Clinical Trials as Topic
Research Design
Language
eng
Date accepted
2022-10-03
License start date
2022-10-03
Citation
Future Oncology, 2022, 18 (29s), pp. 3 - 11
Publisher
FUTURE MEDICINE LTD