dc.contributor.author | Hopwood, P | |
dc.contributor.author | Wonderling, D | |
dc.contributor.author | Watson, M | |
dc.contributor.author | Cull, A | |
dc.contributor.author | Douglas, F | |
dc.contributor.author | Cole, T | |
dc.contributor.author | Eccles, D | |
dc.contributor.author | Gray, J | |
dc.contributor.author | Murday, V | |
dc.contributor.author | Steel, M | |
dc.contributor.author | Burn, J | |
dc.contributor.author | McPherson, K | |
dc.date.accessioned | 2018-09-11T10:22:08Z | |
dc.date.issued | 2004-08-31 | |
dc.identifier | 5 | |
dc.identifier.citation | BRITISH JOURNAL OF CANCER, 2004, 91 pp. 884 - 892 | |
dc.identifier.issn | 0007-0920 | |
dc.identifier.uri | https://repository.icr.ac.uk/handle/internal/2629 | |
dc.identifier.doi | 10.1038/sj.bjc.6602081 | |
dc.description.abstract | The aim of the study was to compare psychosocial outcomes for 50 new clinic attendees, referred for cancer genetic counselling to five UK centres. The centres represented England, Scotland and Wales, and were randomly selected from groups ranked by different levels of clinical activity in cancer genetics practice. Questionnaires assessed demographic data, risk perception, mental health and use of health services pre-consultation and at 1 and 12 months follow-up. Satisfaction was measured for attendees and referring doctors at follow-up. A total of 256 unaffected adults fulfilled the study criteria. The five centres varied widely with respect to service organisation and activity, but all had a greater proportion of unaffected attendees with a breast cancer risk ( 61 - 91%) than either a bowel cancer risk ( 0 - 33%) or ovarian cancer risk ( 3 - 25%). There were no significant differences in the psychosocial data between centres pre-counselling. No significant change over time occurred for any of the centres for risk perception or general psychological distress. There were significant differences between centres in reduction of cancer worry from baseline to 12 months and with the number of women who were recommended to have mammographic surveillance who had not received this. Overall, one-third of women for whom mammography had been recommended had not been screened within 1 year of follow-up. Subsequent attendance at the GP, but not at a hospital, was associated with risk level, but differences between centres could not be analysed. Satisfaction differed significantly between centres for 4 : 14 aspects of service provision and with 3 : 17 items concerning communication; satisfaction was high overall. Over 90% of referring doctors were moderately/very satisfied with the service, but 23% were dissatisfied with waiting times and 19% with access to preventive treatment. Results differed significantly between centres for doctor’s satisfaction with the provision of referral criteria and prescribing information. In conclusion, there were relatively few significant differences in psychosocial outcomes between centres, considering the wide variation in service organisation and activity. These significant differences were not consistent across the centres, therefore, differences could not be linked to specific aspects of service provision. | |
dc.format.extent | 884 - 892 | |
dc.language | eng | |
dc.language.iso | eng | |
dc.publisher | NATURE PUBLISHING GROUP | |
dc.rights.uri | https://creativecommons.org/licenses/by/4.0 | |
dc.title | A randomised comparison of UK genetic risk counselling services for familial cancer: psychosocial outcomes | |
dc.type | Journal Article | |
rioxxterms.versionofrecord | 10.1038/sj.bjc.6602081 | |
rioxxterms.licenseref.uri | https://creativecommons.org/licenses/by/4.0 | |
rioxxterms.licenseref.startdate | 2004-08-31 | |
rioxxterms.type | Journal Article/Review | |
dc.relation.isPartOf | BRITISH JOURNAL OF CANCER | |
pubs.notes | affiliation: Hopwood, P (Reprint Author), Christie Hosp NHS Trust, CRC Psychol Med Grp, Stanley House,Wilmslow Rd, Manchester M20 4BX, Lancs, England. Christie Hosp NHS Trust, CRC Psychol Med Grp, Manchester M20 4BX, Lancs, England. Univ London London Sch Hyg & Trop Med, Canc & Publ Hlth Unit, London WC1E 7HT, England. Univ London London Sch Hyg & Trop Med, Hlth Serv Res Unit, London WC1E 7HT, England. Royal Marsden Hosp, Sutton SM2 5PT, Surrey, England. Inst Canc Res, Psychol Res Grp, Sutton SM2 5PT, Surrey, England. Inst Canc Res, Sect Canc Genet, Sutton SM2 5PT, Surrey, England. Western Gen Hosp, Canc Res UK Edinburgh Oncol Unit, Edinburgh EH4 2XR, Midlothian, Scotland. Int Ctr Life, Inst Human Genet, Newcastle Upon Tyne NE1 3BZ, Tyne & Wear, England. Womens Hosp Med Ctr, Dept Med Genet, Birmingham, W Midlands, England. Princess Ann Hosp, Wessex Clin Genet Serv, Southampton SO16 5YA, Hants, England. Univ Wales Hosp, Inst Med Genet, Cardiff CF4 4XN, S Glam, Wales. Univ London St Georges Hosp, Dept Med Genet, London, England. Univ Dundee, Ninewells Hosp & Med Sch, Tayside Reg Clin Genet Serv, Dundee DD1 9SY, Scotland. Churchill Hosp, Res Inst, Nuffield Dept Obstet & Gynaecol, Oxford OX3 7LJ, England. keywords: breast cancer family history; risk counselling; psychological distress; satisfaction keywords-plus: SOUTH EAST SCOTLAND; BREAST-CANCER; PRIMARY-CARE; COMPUTER SUPPORT; CONTROLLED-TRIAL; OVARIAN-CANCER; WOMEN; HISTORY; IMPACT; PERCEPTION research-areas: Oncology web-of-science-categories: Oncology author-email: [email protected] number-of-cited-references: 29 times-cited: 16 usage-count-last-180-days: 0 usage-count-since-2013: 2 journal-iso: Br. J. Cancer doc-delivery-number: 849AU unique-id: ISI:000223510500013 oa: gold_or_bronze da: 2018-09-10 | |
pubs.notes | Not known | |
pubs.organisational-group | /ICR | |
pubs.organisational-group | /ICR/Primary Group | |
pubs.organisational-group | /ICR/Primary Group/ICR Divisions | |
pubs.organisational-group | /ICR/Primary Group/ICR Divisions/Closed research teams | |
pubs.organisational-group | /ICR/Primary Group/ICR Divisions/Closed research teams/Psychology Research Group | |
pubs.organisational-group | /ICR | |
pubs.organisational-group | /ICR/Primary Group | |
pubs.organisational-group | /ICR/Primary Group/ICR Divisions | |
pubs.organisational-group | /ICR/Primary Group/ICR Divisions/Closed research teams | |
pubs.organisational-group | /ICR/Primary Group/ICR Divisions/Closed research teams/Psychology Research Group | |
pubs.volume | 91 | |
pubs.embargo.terms | Not known | |
icr.researchteam | Psychology Research Group | en_US |
dc.contributor.icrauthor | Watson, Maggie | |