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dc.contributor.authorHoneyford, K
dc.contributor.authorExpert, P
dc.contributor.authorMendelsohn, EE
dc.contributor.authorPost, B
dc.contributor.authorFaisal, AA
dc.contributor.authorGlampson, B
dc.contributor.authorMayer, EK
dc.contributor.authorCostelloe, CE
dc.coverage.spatialSwitzerland
dc.date.accessioned2022-10-10T10:28:48Z
dc.date.available2022-10-10T10:28:48Z
dc.date.issued2022-08-19
dc.identifier.citationFrontiers in Digital Health, 2022, 4 pp. 940330 -
dc.identifier.issn2673-253X
dc.identifier.urihttps://repository.icr.ac.uk/handle/internal/5529
dc.identifier.eissn2673-253X
dc.identifier.eissn2673-253X
dc.identifier.doi10.3389/fdgth.2022.940330
dc.description.abstractHarnessing Real World Data is vital to improve health care in the 21st Century. Data from Electronic Health Records (EHRs) are a rich source of patient centred data, including information on the patient's clinical condition, laboratory results, diagnoses and treatments. They thus reflect the true state of health systems. However, access and utilisation of EHR data for research presents specific challenges. We assert that using data from EHRs effectively is dependent on synergy between researchers, clinicians and health informaticians, and only this will allow state of the art methods to be used to answer urgent and vital questions for patient care. We propose that there needs to be a paradigm shift in the way this research is conducted - appreciating that the research process is iterative rather than linear. We also make specific recommendations for organisations, based on our experience of developing and using EHR data in trusted research environments.
dc.formatElectronic-eCollection
dc.format.extent940330 -
dc.languageeng
dc.language.isoeng
dc.publisherFRONTIERS MEDIA SA
dc.relation.ispartofFrontiers in Digital Health
dc.rights.urihttp://creativecommons.org/licenses/by/4.0/
dc.subjectdata quality
dc.subjectdigital health, research protocol, real world data
dc.subjectelectronic health records
dc.subjectresearch ethics
dc.subjecttrusted research environment
dc.titleChallenges and recommendations for high quality research using electronic health records.
dc.typeJournal Article
dcterms.dateAccepted2022-07-28
dc.date.updated2022-10-06T14:28:28Z
rioxxterms.versionVoR
rioxxterms.versionofrecord10.3389/fdgth.2022.940330
rioxxterms.licenseref.startdate2022-01-01
rioxxterms.typeJournal Article/Review
pubs.author-urlhttps://www.ncbi.nlm.nih.gov/pubmed/36060540
pubs.organisational-group/ICR
pubs.publication-statusPublished online
pubs.publisher-urlhttp://dx.doi.org/10.3389/fdgth.2022.940330
pubs.volume4
icr.researchteamHealth Informatics
dc.contributor.icrauthorCostelloe, Ceire
icr.provenanceDeposited by Mr Arek Surman on 2022-10-06. Deposit type is initial. No. of files: 1. Files: Challenges and recommendations for high quality research using electronic health records.pdf


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