dc.contributor.author | Russ, DE | |
dc.contributor.author | Gerlanc, NM | |
dc.contributor.author | Shen, B | |
dc.contributor.author | Patel, B | |
dc.contributor.author | de González, AB | |
dc.contributor.author | Freedman, ND | |
dc.contributor.author | Cusack, JM | |
dc.contributor.author | Gaudet, MM | |
dc.contributor.author | García-Closas, M | |
dc.contributor.author | Almeida, JS | |
dc.coverage.spatial | England | |
dc.date.accessioned | 2023-11-28T09:30:20Z | |
dc.date.available | 2023-11-28T09:30:20Z | |
dc.date.issued | 2023-10-25 | |
dc.identifier | 238 | |
dc.identifier | 10.1186/s12911-023-02338-6 | |
dc.identifier.citation | BMC Medical Informatics and Decision Making, 2023, 23 (1), pp. 238 - | |
dc.identifier.issn | 1472-6947 | |
dc.identifier.uri | https://repository.icr.ac.uk/handle/internal/6076 | |
dc.identifier.eissn | 1472-6947 | |
dc.identifier.eissn | 1472-6947 | |
dc.identifier.doi | 10.1186/s12911-023-02338-6 | |
dc.identifier.doi | 10.1186/s12911-023-02338-6 | |
dc.description.abstract | BACKGROUND: Online questionnaires are commonly used to collect information from participants in epidemiological studies. This requires building questionnaires using machine-readable formats that can be delivered to study participants using web-based technologies such as progressive web applications. However, the paucity of open-source markup standards with support for complex logic make collaborative development of web-based questionnaire modules difficult. This often prevents interoperability and reusability of questionnaire modules across epidemiological studies. RESULTS: We developed an open-source markup language for presentation of questionnaire content and logic, Quest, within a real-time renderer that enables the user to test logic (e.g., skip patterns) and view the structure of data collection. We provide the Quest markup language, an in-browser markup rendering tool, questionnaire development tool and an example web application that embeds the renderer, developed for The Connect for Cancer Prevention Study. CONCLUSION: A markup language can specify both the content and logic of a questionnaire as plain text. Questionnaire markup, such as Quest, can become a standard format for storing questionnaires or sharing questionnaires across the web. Quest is a step towards generation of FAIR data in epidemiological studies by facilitating reusability of questionnaires and data interoperability using open-source tools. | |
dc.format | Electronic | |
dc.format.extent | 238 - | |
dc.language | eng | |
dc.language.iso | eng | |
dc.publisher | BMC | |
dc.relation.ispartof | BMC Medical Informatics and Decision Making | |
dc.rights.uri | https://creativecommons.org/licenses/by-nc-nd/4.0/ | |
dc.subject | Data collection | |
dc.subject | Data commons | |
dc.subject | Data science | |
dc.subject | Epidemiologic methods | |
dc.subject | Surveys and questionnaires | |
dc.subject | Humans | |
dc.subject | Software | |
dc.subject | Surveys and Questionnaires | |
dc.subject | Epidemiologic Studies | |
dc.title | Quest markup for developing FAIR questionnaire modules for epidemiologic studies. | |
dc.type | Journal Article | |
dcterms.dateAccepted | 2023-10-13 | |
dc.date.updated | 2023-11-28T08:37:10Z | |
rioxxterms.version | VoR | |
rioxxterms.versionofrecord | 10.1186/s12911-023-02338-6 | |
rioxxterms.licenseref.startdate | 2023-10-25 | |
rioxxterms.type | Journal Article/Review | |
pubs.author-url | https://www.ncbi.nlm.nih.gov/pubmed/37880712 | |
pubs.issue | 1 | |
pubs.organisational-group | ICR | |
pubs.publication-status | Published online | |
pubs.publisher-url | http://dx.doi.org/10.1186/s12911-023-02338-6 | |
pubs.volume | 23 | |
icr.provenance | Deposited by Prof Amy Berrington de Gonzalez on 2023-11-28. Deposit type is initial. No. of files: 1. Files: Quest markup for developing FAIR questionnaire modules for epidemiologic studies.pdf | |